Class Time: 32:06 minutes

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The Power of the Program is in the Assignments Below
The most powerful part of this course is the guidance, which is provided by the assignments each week. This is where you will find possible solutions, your ‘a-ha’ moments and where your thinking has a chance to transform. And you may find out a lot about yourself along the way. Without this aspect of the course, the material presented is just a bunch of information with little connection to your circumstances. The assignments bring the material home and become a living, working plan.

SUGGESTED INSTRUCTIONS:
1.View the video lesson above as you move through the assignments below.
2.The assignments go with each topic as listed.
3.Please stop the video as you do each topic assignment.
4.Then begin the video and move on to the next topic.
5.Please consider doing all of the assignments of the present lesson before you move on to the next week in the course.

Lesson 1 Assignments below are under their respective topics (from the video).

Reducing Suffering

  1. Is your person receiving palliative care services right now? If not, are they comfortable? If so, are they comfortable? If they are not comfortable, understand that palliative care will help them. If you are on palliative services and your loved one is still suffering, the medical team needs to know. Please tell them so they can find a new treatment option.
  2. View the video here from Diane Meier regarding What is Palliative Click Here. What are your insights after watching this?
  3. Find out if your city has a palliative care program in your hospital to serve people who are NOT on hospice care. If you have several hospitals, check with all of them. It may affect where you take your person if they must go to the hospital. You can ask your local hospice, your physician, or home health agencies about this as well. See if you can find a palliative care program in case suffering becomes a problem for your person. If your person does not qualify for hospice and is suffering with symptoms of illness, palliative care is the answer.

Comfort As You Cure

  1. Most of us will do almost anything to survive. And we are caught off guard when a serious illness shows up. If your person is suffering right now, are you willing to find out if they are eligible for palliative care and try to find it? After viewing the video or listening to the audio, do you really understand that palliative care is NOT hospice? Write about what this brings up for you.
  2. Do you still have experiences from the past that are painful to recall regarding the suffering of someone you loved due to their disease process or treatments? What are they?

Sometimes old, unhealed experiences will affect how you view what is happening now. For instance, your person might not be having the same level of difficulty as someone you knew once did, but you are assuming they are. Ask your person how they are feeling, believe what they say, and act on it accordingly. Try not to read into what they are If you suspect they are “being strong” right now and not letting you know the truth. Know that if you honor where they are right now, they may relax and be truthful with you soon (if they are not being so now). Ask your person how they are doing. Do you believe them?

Where Few Want To Go

  1. What is your experience with hospitals? Describe your biggest frustration with them.
  2. Are any patient advocates available in your town? Contact a few to see if their services can be helpful to you. See if you can find someone to be your “hospital recorder (explained in the video)” should your person need to go back to the hospital. You may be able to find someone to do this for you for a fee if friends or family are not available.
  3. Who is your ”go to” support person? Have you shared with them how to be the most helpful to you right now as you deal with this? You are your person’s go-to and you need one for yourself. If you have one, are you comfortable telling them when you want them to just listen and when you may want some advice?
  4. What is your way of grounding yourself in the midst of high anxiety situations? Being emotionally present to listen objectively to your person’s feelings and opinions will be most helpful if you have a way to unwind after. Find a trusted confidant with whom you can process your own feelings about what is happening. They are often different than your person’s feelings. This will be one of the ways you can provide grounding for yourself during a time that can often be chaotic or unpredictable.

Living As You Are Dying

  1. Have you had experience with hospice before? What was it like?
  2. If your person is not on hospice service now, has it been suggested? How do you feel about this?
  3. If you are open to a discussion, call the physician who suggested it and ask for hospice referral. If you do not have a physician yet, call your local hospice and ask them if they would come over to just talk with you if you’d like that. Ask them what they suggest.
  4. Read through the latest NHPCO Facts and Figures released in December 2022 HERE.

The Challenges of Where To Live

  1. “Caregiving for Family and Friends—A Public Health Issue.” Centers for Disease Control and Prevention. Click Here.
  2. Please look over The National Consumer Voice’s Nursing Home Resident Fact Sheets. Click Here.